Rare disease specialists can also be rare. GaRDN is continuing to collate a list of Health Professionals with specialised knowledge and experience in rare and genetic diseases.
Use of the Register by Health Professionals: This register can encourage collaboration, a multidisciplinary approach and be a valuable resource for Health Professionals caring for people with rare and genetic diseases.
Use of the Register by Consumers: Direct contact of Medical Specialists listed within the register is not the intent of the register. If consumers find information relevant to their condition on the register, they can provide their GP with the Medical Specialist contact details.